Charity Focus – Motor Neurone Disease Association

 This weekend I’ll be hosting a charity afternoon tea in aid of the Motor Neurone Disease Association. It’s the first charity event I’ve done for them since my mum passed away a few years ago after being diagnosed with the disease.  Anyone who’s experienced seeing a relative with a terminal illness will know how difficult it is, fundraising for this charity is just one way I wanted to give something back for the support they gave and to help them continue to support  others.

I’d never heard of Motor Neurone Disease (MND) before my mum had it, perhaps because these things aren’t what you read about until you’re faced with it.   I never did that much research even when I was more aware as I never knew what horrors google might bring up.  I just knew that it was neurological disease which has no effective treatment or a cure.   I was also aware of that Stephen Hawking suffers from this disease.

Here are just some of the harsh facts I recently discovered about this disease:

  • It kills five people in the UK every day.
  • Today there are 5,000 people living with MND in the UK.
  • It can affect any age and as a complex disease symptoms vary for each person.
  • Life expectancy from diagnosis is two to five years.
  • There is no cure and the cause of MND in unknown in 95% of cases.
  • MND attacks the nerves that control movement; people with MND can still think and feel, but their muscles refuse to work.

The Association’s mission is:

 “To fund and promote research to bring about an end to MND. Until then we will do all that we can to enable everyone with MND to receive the best care, achieve the highest quality of life possible, and die with dignity. We will also do all that we can to support the families and carers of people with MND.”

As a charity with a leading reputation they’re able to fund cutting-edge MND research within the UK and across the world, only research of the highest scientific excellence and greatest relevance to MND is funded.  For every £1 they commit to collaborative MND research, they attract another £2 to £3 from other major funding bodies.  They provide emotional, financial and practical support, such as specialised equipment, making life just that little bit easier.

It would be great to raise a nice sum of money so if you’d like to make a donation please visit my Just Giving page.   All of the information in this post has been provided by the Motor Neurone Disease Association, they’ve been lovely to communicate with and are truly grateful of any donations received.

I’m looking for bigger fundraising ideas to do later in the year so if you have any suggestions please comment below!